cinnamongal is offline cinnamongal Post #21  July 9,2009, 7:06pm
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DMC80809 God bless you for forming this group. There are many support groups but its nice to have this online medium to hear of others struggles and success stories. I'm so grateful to you. I hope others find this site as well. I wish everyone the very best.
 
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dmc80809 is offline dmc80809 Post #22  July 12,2009, 10:05am
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Cinn, your post made my day...

I have had an especially hard time with my son's behavior the last couple of days,,,it has left me feeling a bit drained....

I do have the day to myself, going to work outdoors and have dinner with a good friend tonight...

I hope you keep posting here...
 
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yeoww is offline yeoww Post #23  July 14,2009, 6:46pm
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Hi everyone! I'm the mom of a 13-year old diagnosed with ADHD and bipolar disorder. To describe the road we've traveled would be a very long post and no doubt put you all to sleep :-/ Let's just say that unless you parent a special needs child, you have no idea of what's involved, and it makes dating a real challenge.

On the other hand, my son is sensitive, funny, smart, and has a big tender heart. I just wish, after years of programs, treatments, medications, diets, behavior modification...you name it...that we could find that magic something that helps him to love himself again. At this point, all I want is for him to be happy!

Probably more than you needed to read, right? LOL
 
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Jim63 is offline Jim63 Post #24  July 15,2009, 12:15pm

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Hello,

I am not a parent of a child. I am fluent in American Sign Language. I am also familiar with Epilepsy. Don't know if I can offer any input, but I thought I would join this group.
 
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dmc80809 is offline dmc80809 Post #25  July 15,2009, 9:54pm
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yeoww wrote :
Hi everyone! I'm the mom of a 13-year old diagnosed with ADHD and bipolar disorder. To describe the road we've traveled would be a very long post and no doubt put you all to sleep :-/ Let's just say that unless you parent a special needs child, you have no idea of what's involved, and it makes dating a real challenge.

On the other hand, my son is sensitive, funny, smart, and has a big tender heart. I just wish, after years of programs, treatments, medications, diets, behavior modification...you name it...that we could find that magic something that helps him to love himself again. At this point, all I want is for him to be happy!

Probably more than you needed to read, right? LOL

Hi, yeoww...glad you posted, thats what this forum is about...and yes, until you have walked in our shoes, people have a hard time understanding what its like...

Dating is not easy, with a special needs kid...but I do believe there are many people, who if they love you, will accept all that comes with our special kids...

I think the first thing we owe ourselves, as parents of our wonderful kids, is time for ourselves, a little pampering...we give so much, we are so dedicated, I often think many of us feel we don't deserve to be good to ourselves...

I also understand that you just want your son to be happy...I went thru a rough time with my 13 year old, he has a severe form of autism and epilepsy...I was able to find help for him, thru medication and he is much happier now...and that makes me happy...

Keep posting here...it is a safe place to vent and seek support...my thoughts an prayers for you and your son...
 
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dmc80809 is offline dmc80809 Post #26  July 15,2009, 9:57pm
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Jim63 wrote :
Hello,

I am not a parent of a child. I am fluent in American Sign Language. I am also familiar with Epilepsy. Don't know if I can offer any input, but I thought I would join this group.

Hi, Jim, and so glad to see you here...my son recently developed epilepsy. We had a very tough time controlling his seizures, but seems we have found the right medication for him now...its been 2 months since his last seizure...

Do you work with special needs?
 
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Portland_Princess is offline Portland_Princess Post #27  July 22,2009, 2:42pm
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Hi!
I just found this group (after posting about my date that blew me off).
Anyway, I have a 17 year old son with autism (pdd-nos), ADD and dyslexia. He also has a very low "iq", executive functioning disoder and I love him to bits but he is like a giant teddy bear. He is also going in for another assessment as they think he may have psychiatric problems. I also have a 12 year old without any learning challenges (who is actually gifted) and lost another child to luekemia (rather not talk about that).

Although I am American, I moved here from abroad (my marriage was an intercultural/interracial one with a Dutch man) however my oldest son was from a prior relationship. His birth father couldn't handle him and my ex husband was even worse (and I tried to stick it out with him for years but at a certain point, my oldest thought his name was idiot and when he was five years old, I will never forget him asking me how to spell idiot because that was his first name).

We moved back to the US in October and I don't have a lot of friends here. Part of me chose to live here specifically because my relatives constantly wonder how I could have had a child like this when I am "so bright". They mean well but they are constantly offering suggestions as to how he ended up that way (as if it will make a difference).

There are times I just want to get out of the house and zone him out but I know that's not possible. Sometimes I think I am losing my mind listening to him speak (he can go on for HOURS on end about one topic and not notice that you're passed out) and then other times, I feel so sorry for him because I know he will never be independent. My younger son doesn't like to bring anyone home lest they meet his older brother and dating is pretty difficult. At least he has stopped asking me why he can't have a normal brother. I can't leave him alone for longer than 3 hours at a time and getting a babysitter for a hulking 17 year old is pretty hard. My younger son ends up babysitting.
Since his father wants nothing to do with him, we are literally together 24/7 unless his paternal grandmother has him over (and she can only take 2 week periods max before she calls me begging for me to come and get him because he's "Driving her crazy").

I hope my vent isn't taken the wrong way that I don't love him, I do, but sometimes I just feel so exhausted and feel as if what man will willingly sign up for a relationship with me knowing my son is part of the package. I guess that's why it hurt even more when I had finally (I thought) found someone on eHarmony that would accept him and he ended up blowing me off.
 
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dmc80809 is offline dmc80809 Post #28  July 23,2009, 9:47am
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PP:

Welcome to this board!

I got caught up with your other thread...

We all know that you love your son...so, no need to explain your pure exhaustion...and needing time to yourself...

Its so important to have it...when we are allowed to recharge our batteries, its amazing how different the world looks...

First things first...you need respite care ASAP...you've earned it, deserve it...If you are not sure where to go, ask your local school district if they know...most counties offer this service, many times for free and these people are trained to work with our kids...Get yourself 2 nights a week, a Saturday afternoon...set it up to happen every week for you...so you can go out with friends, browse a bookstore uninterrupted, get a manicure...you will feel so good!!!

We all fear being rejected due to our special circumstances...and we will be...its not something everyone will sign up for...When I started dating, I was rejected by many guys due to this...Last summer, i was involved with a man...I had some high hopes, but one day he told me he couldn't walk this road with me...it stung, but I was glad for his honesty...

After much rejection and many, many dates, I met my current man last fall...not only did he not run away, lol, but he put his stake into the ground, despite some rought times too...He recognizes and values how my son's autism has made made me and my kids the special people we are...

Ok, lastly, I did read your other thread...your ONLY mistake is you got a little ahead of this guy...and thats easy to do...I think we parents of special needs kids are a bit more vulnerable than most...Be glad that you saw him for what he is about now vs later...the universe is protecting you...lol.

I have a great book to recommend....Mars and Venus on a Date, by John Gray...he wrote Men are from Mars and Women are from Venus years ago...this is a great book! I have learned so much from it...It will help you learn to have fun dating, navigating the different stages of dating, etc.

So, go get that respite care, manicure and M/V On a Date....and post here whenever you need support...we are in your corner!

Dana
 
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yeoww is offline yeoww Post #29  July 23,2009, 8:20pm
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Hi!
I just found this group (after posting about my date that blew me off).
Anyway, I have a 17 year old son with autism (pdd-nos), ADD and dyslexia. He also has a very low "iq", executive functioning disoder and I love him to bits but he is like a giant teddy bear. He is also going in for another assessment as they think he may have psychiatric problems. I also have a 12 year old without any learning challenges (who is actually gifted) and lost another child to luekemia (rather not talk about that).

Although I am American, I moved here from abroad (my marriage was an intercultural/interracial one with a Dutch man) however my oldest son was from a prior relationship. His birth father couldn't handle him and my ex husband was even worse (and I tried to stick it out with him for years but at a certain point, my oldest thought his name was idiot and when he was five years old, I will never forget him asking me how to spell idiot because that was his first name).

We moved back to the US in October and I don't have a lot of friends here. Part of me chose to live here specifically because my relatives constantly wonder how I could have had a child like this when I am "so bright". They mean well but they are constantly offering suggestions as to how he ended up that way (as if it will make a difference).

There are times I just want to get out of the house and zone him out but I know that's not possible. Sometimes I think I am losing my mind listening to him speak (he can go on for HOURS on end about one topic and not notice that you're passed out) and then other times, I feel so sorry for him because I know he will never be independent. My younger son doesn't like to bring anyone home lest they meet his older brother and dating is pretty difficult. At least he has stopped asking me why he can't have a normal brother. I can't leave him alone for longer than 3 hours at a time and getting a babysitter for a hulking 17 year old is pretty hard. My younger son ends up babysitting.
Since his father wants nothing to do with him, we are literally together 24/7 unless his paternal grandmother has him over (and she can only take 2 week periods max before she calls me begging for me to come and get him because he's "Driving her crazy").

I hope my vent isn't taken the wrong way that I don't love him, I do, but sometimes I just feel so exhausted and feel as if what man will willingly sign up for a relationship with me knowing my son is part of the package. I guess that's why it hurt even more when I had finally (I thought) found someone on eHarmony that would accept him and he ended up blowing me off.
When I read about your 5-year-old son asking how to spell "idiot" just now, I burst into tears. The world is not kind to our children. I'm fortunate in that my son lives with his dad right now, because he explodes into violent bouts of temper and physically threatens me and my daughter along with breaking up the house...so it became a safety issue a year or so ago, and I asked his father, who can physically restrain him in an explosion, to take him. I felt like I was giving up my heart. But I have to think of my 12-year-old daughter, who's scared to death of her brother and wants to know why she can't have a "normal" brother.

I wish I had comforting words other than to say "you're not alone". A sense of humor is a lifesaver, particularly during dating when this topic is introduced...I can literally see the glaze drop over mens' eyes, kind of like that glaze that reptiles get when they're dozing...and I know that I'm experiencing my last date with this person!

Someone told me once that God sent my son to me because He knew I could take care of him when not too many others could. Sometimes I find comfort in that and sometimes I think, "Gee, God, thanks a lot!" (Again, weird humor).

I'm very glad you're here.
 
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Portland_Princess is offline Portland_Princess Post #30  July 25,2009, 4:13pm
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yeoww wrote :
When I read about your 5-year-old son asking how to spell "idiot" just now, I burst into tears. The world is not kind to our children. I'm fortunate in that my son lives with his dad right now, because he explodes into violent bouts of temper and physically threatens me and my daughter along with breaking up the house...so it became a safety issue a year or so ago, and I asked his father, who can physically restrain him in an explosion, to take him. I felt like I was giving up my heart. But I have to think of my 12-year-old daughter, who's scared to death of her brother and wants to know why she can't have a "normal" brother.

I wish I had comforting words other than to say "you're not alone". A sense of humor is a lifesaver, particularly during dating when this topic is introduced...I can literally see the glaze drop over mens' eyes, kind of like that glaze that reptiles get when they're dozing...and I know that I'm experiencing my last date with this person!

Someone told me once that God sent my son to me because He knew I could take care of him when not too many others could. Sometimes I find comfort in that and sometimes I think, "Gee, God, thanks a lot!" (Again, weird humor).

I'm very glad you're here.
Thank you for your post.
Saying I'm not alone (and knowing it) means a LOT. When I was in Europe, I was pretty isolated (and known in our village as the woman who had the "idiot" for a son). Just knowing I'm not the only mom facing challenges with my son really helps me face some of the battles.

He has a schedule (am = Yankees and pm = economic policy). He shocked me this afternoon by telling me he was sorry that my date didn't go well. I hadn't told him anything about it but in the middle of discussing the German economy, he threw in that he was sorry and then quickly resumed his discussion we've had every day for the past three years. It sounds silly but those little things (that happen once every year or two) that give me hope. He feels emotions but in a different way than other people. Then ten minutes later he went into the bathroom and pulled down the towel rack and followed that up by breaking another one of the glass milk bottles and cutting his hand and not so much as crying/flinching while he left a trail of blood through the kitchen. I told him his hand was bleeding and he only said "Oh". My 12 year old then asked me if when I die, does this mean he has to take care of his older brother and pour his milk too.
Every day is a roller coaster but it's a ride I'm used to.
 
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