dmc80809 is offline dmc80809 Post #11  September 11,2008, 8:01pm
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Hi all!* Just found this group.* I'm actually not a parent of a special needs child.* I'm not a parent of anyone.* But I worked with special needs kids for about five years as a Music Therapist.* I'm not working in that field anymore but I still have a special place in my heart for special needs kids, esepcially those in the autism/aspergers spectrum.* I hope it's okay that I joined the group.* *
Lark...welcome! We love having you here...and I'm delighted to hear you are/were a music therapist...

My son has this amazing ability to play music by ear...he also has perfect pitch...we have incorporated music with many of his therapies...

Please feel free to chime in with ideas and feedback!

Dana
 
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dmc80809 is offline dmc80809 Post #12  September 11,2008, 8:03pm
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Hello everyone. Let me do a formal introduction. I'm the father of a wonderful 5 year old with mild autism. Luckily he is very verbal(when he wants to be) and very affectionate. I have him on the weekends and some extra time depending on my work schedule. I'm so glad he is part of my life. He is total fun to be around.


*


For those parents that have children with special needs, please check in your area for support groups. My area(TN) has Autism support groups for most counties. These support groups are great resources for learning how to get services for your children. I know without my local support group, I would be totally lost.


*


I hope to talk more with everyone here about issues facing us as parents of special needs kids.


*


G
Hi, G, glad you are here...

Dana
 
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CelticLark is offline CelticLark Post #13  September 11,2008, 10:25pm
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Hi all! Just found this group. I'm actually not a parent of a special needs child. I'm not a parent of anyone. But I worked with special needs kids for about five years as a Music Therapist. I'm not working in that field anymore but I still have a special place in my heart for special needs kids, esepcially those in the autism/aspergers spectrum. I hope it's okay that I joined the group.

Lark...welcome! We love having you here...and I'm delighted to hear you are/were a music therapist... My son has this amazing ability to play music by ear...he also has perfect pitch...we have incorporated music with many of his therapies... Please feel free to chime in with ideas and feedback! Dana
Thanks, Dana! I always found the responses I got from the kids to be amazing. I mainly worked with autism/aspergers, as I said, and they were all so incredibly musical. Playing an instrument or singing a song would help them connect in ways they wouldn't connect in other therapies. Sometimes I was even envious of how much more easily music came to them than it does to me!


I guess, techincally, I can still say I'm a music therapist but I usually just say I hold a BA in it. It is kinda fun that I could put MT after my name if I ever wanted to sound more important.


I also used to administer the Tomatis Method and we got some incredible results from it. A lot of kids had language explosions and dramatic behavior improvements. Tomatis isn't the same as music therapy but is another type of intervention. It even helped me with some sound filtering and processing issues.
 
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TinkerKat is offline TinkerKat Post #14  September 13,2008, 6:57pm
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Hi, all. I too just found this group. I have three kids. My youngest, Nico is almost 7 and has Down Syndrome.


Looking forward to reading about everyone's stories.


 
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dmc80809 is offline dmc80809 Post #15  September 13,2008, 11:01pm
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Hi, all. I too just found this group. I have three kids. My youngest, Nico is almost 7 and has Down Syndrome.


Looking forward to reading about everyone's stories.

We are so glad you are here..please, don;t be a stranger and would love to hear more about Nico...
 
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JonBoy is offline JonBoy Post #16  December 1,2008, 9:22pm
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My youngest daughter was born with Microcephaly. She just has a small brain with the challenges that entails for a teenager. She is so special to me and contributes so much purpose to my life now and if she was normal I wouldn't be dating till she was at least 18 but because she may always be a child in a sense then I need to find a possible help mate. Of course she needs to feel and know I want to marry her for so many more reasons to ensure us of a romantic happy union. Here's a good definition... http://en.wikipedia.org/wiki/Microcephaly


Thanks for forming this group to meet others.
 
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dmc80809 is offline dmc80809 Post #17  December 3,2008, 5:45pm
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jon...first, thank you for joining our group...we are so happy to have you here...and thank you for the link...it sounds like your daughter may face many challenges, but it also is obvious she is lucky to have you as her father...





our children put our lives in a whole new perspective...my son has a moderate to severe form of autism...he has made great strides and progress...so, i never give up the hope, always thrive on those daily miracles.





That special partner is out there for you...and your daughter...





 
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Nie_Mehr is offline Nie_Mehr Post #18  January 27,2009, 4:35pm
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My son was born 4 1/2 months early. He weighed 1 lb 5 oz and was only 12 3/4 ins long. Mainly he is blind and has ADHD but there is a list that is as long as my arm of the problems he has.


It is hard finding someone that sees him as a child and not a problem. Everyone thinks he is a handful to be around but he is not that bad. I treat him the same way I treat his sister, whom is one year and 2 months older. I feel if she can do some thing so can he but I understand he may not do that thing as well. He can clean his room, get dressed and take a bath by himself. He helps cook dinner and helps with cleaning clothes. He is very bright in my eyes but since he is 11 yrs old he should be about 4-5 grade level in school and he is about 1-2 grade. He is very smart but chooses not to do what he needs to do and is very stuborn, thats where most of my problems come from.


I just wanted to let others know the child I have. I am also a Divorced for about 3-4 yrs now. His dad (father/sperm donor) chose to ingore him and not do anything to help take care of him or even play with him. I believe in his fathers eyes he was not a normal son that he can play baseball or football with. Now his father has another son with another women and he does everything for that child. Not that I am jelious or anything like that, I just feel that if his father wanted to be a part of my sons life he should have treated him better in the beginning. I did everything for my children and now after the divorce my ex wants parent time. Parent time should be for Parents whom can call themselfs parents to that child not just because the child is half theirs. Sorry to get off topic but my ex just ticks me off sometimes when it comes to my son's well being.
 
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don62944 is offline don62944 Post #19  June 25,2009, 2:40pm
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Wow this is great! I am a single male parent just turning 65 with two special needs kids at home. I adopted them 8 years ago, actually 3 kids but my oldest just graduated from high school, top 10% of her class, and wanted to try living on her own as she gets ready for college. My 14-year-old son is doing great and has been on the deans’ list for the last 3 years. My 9 year old has had continuing challenges the last 3 years but is doing much better. The two youngest were born addicted to Heroin, Meth and alcohol. A great deal of my time has been spent the last couple of years fighting the county and state to do their job and finally things seem to be going in the right direction.
I guess my question is finding that certain someone in their 50s or 60s that are OK with special needs kids or kids in general living at home. My profile is very honest and the first part about passions list the kids but soon after the first contact if the don’t close right away they drift away. I find most that even answer my communications distance themselves very quickly as they assume my kids have bigger challenges than they have. A few of the comments I have received have been that they have raised their children and don’t really want to start again and they just wanted to wish me luck in finding that special someone which is fine with me, at least they are being honest. I love kids and don’t have a problem sharing my life with that forever person and their children just trying to figure out how to get out of the starting blocks. I am not desperate but it would be great to have someone in my life that could see how special and loving my family is. I am open to any input and am sorry this is so long just my first post, thanks.
Don
 
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lizzyshelp is offline lizzyshelp Post #20  July 4,2009, 3:04pm
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dr1,that is exactly how my mom felt because there was no one with kids like my brother lived in our area so she joined a group like this one and got lots of great advice.
 
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