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needabreak needabreak is offline
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I am so frustrated! I am 25 and have a 9 month old. I am single and trying to find romance. But my problem is that I'm having a hard time getting around her to find him. Sage has Isovaleric Acidemia. 1 in 250,000 people have it. There isnt anyone else in our city that has this disorder, so I am left to rely on people thru email to discuse problems. I dont like bring people over to my home because it is obvious that my daughter has a very special need. I have never tried to hide her problems from anyone....which has left me date less for a while. Once people find out how stressful my life can get, they tend to run. All my friends have actually "packed up and left" when the going got to rough with my situation. My parents have been great with helping out when I do have a date...but when it is all said and done, the guy never calls again, or I get to busy to stop and think about contacting him.
How do you handle this? I had a hard time dating before she came along, now it's near impossible. Any advice would be great. Thanks in advance!
Ann
- July 28th, 2009, 03:55 pm
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dmc80809 dmc80809 is offline
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Ann...

I have never heard of this disorder and it certainly sounds like a lot for you to be manging on your own...

Our kids bring us a great gift...they bring special people into our lives...and screen out the ones that can not be truly supportive...

I, too, lost a few friends when my son was diagnosed...it was painful, but his disability also brought the most incredible, wonderful people into our lives...

Don't take to heart if men reject your situation...sweetie, you need someone really strong for you and your baby...and it will be worth the wait...

In the meantime, please take care of yourself and don't be afraid to ask for all of the help you need to raise your daughter...

(big hug)

Dana
- July 29th, 2009, 11:51 am
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needabreak needabreak is offline
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Thanks Dana,
I have asked for help...but sometimes I feel that my asking gets to be to much. As of yesterday I was given the ok to let Sage sleep through the night. What a great feeling that was! But I have asked people for help when it comes to things like shopping, and searching for a job. It gets hard to take care of a baby that doesn't have a special need, but here I am...almost feeling alone and very restricted.
I almost wish I had stayed with her dad...just so that I wouldn't have to do this alone, but then I think of how poorly he treated me and how little he cares about Sage and realize it was so worth it to come home. I just hope that right guy comes along within a reasonable amount of time. I keep saying that if I havent found anyone by the time she is 2, I'm just going to go at it alone and accept it. Guess we will see. Thank you for your advice
- July 31st, 2009, 12:21 pm
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Hey Everyone I am new and I know how you feel. My daughter which is now 6 years old has DiGeorge Syndrome { It's rare too } and I have staied with her through out hospital stays, There outside the surgies doors, etc... and I had NO-ONE to hold my head, Still don't and I would love to have someone to put their arms around me to tell me it's okay or take some of the stress off of me. I would love to date !!! They take a look at my daughter and that is it--- I end the date. I know what they are thinking; I think I do. Am I wrong ?????
- August 10th, 2009, 02:57 pm
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