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My son has CP. He is purely delightful and happy, and yes, very needy. In most cases I'm happy to be connected at the hip with him, as I get great satisfaction in reveling in our genuine unconditional and close relationship. Perhaps no-one will ever know how unconditional love really is- unless they too have one of these little "gifts from god". But there's also a downside to it, in that I get very lonely, and am too busy to have a full connection with anyone else. Not even family. And in some ways, he is my ball and chain. I have a mate that I have been exclusive with for the past four years, but he refuses to engage in activities with both of us (my son and I). In fact clearly indicates his inability to enjoy anything when my son is around. This has created a kind of misery and isolation for my son and I. It's hard to know just how I would get out to meet others with him in tow. Does anyone have any similar situations? Any constructive ideas besides to leave him behind? He requires nurses to care for him, and the breaks are limited to 8 hours per day ending at 3pm.
- July 17th, 2009, 04:49 pm
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